Thursday, August 26, 2010
We spent the weekend out in the bush, off road following some very brave, but very stupid friends who did the Avon Descent. It was Tom's first experience of the Avon and while he slept through a lot of it, he loved being out in the fresh air. Caitlin of course loved the bumps and crashes that 4WD in her chair causes and Grace, well, she was just Grace and loved it all!
The girls also had dress up day for book week which is always the bane of my life, but a huge highlight for them. Caitlin wanted to go as a clown and Grace went as Eleanor from the book The Day my Bum Went Psycho!!! Tom even got into the spirit and wore a Winnie the Pooh outfit. The girls paraded across the stage and the smile on Caitlin's face was priceless. These are such special memories, I have to try and remember them for always.
Caitlin is busy practising for her First Holy Communion and last night we had a Parent and Student information evening. Caitlin was THE most excited person there. She was so vocal throughout the whole night and we had such a special time together, just the two of us, which seems like a rare thing these days!
We are also trialing a new head switch and head support system, in conjunction with a PODD book for communication and she is really thrilled with this. It's taken us so long, and as with everything, a long, hard fight where Mum ended up bursting into tears and throwing a patty at the therapists but we seem to be making some progress now. Thank God for her teachers and her school that gave me 110% support and also went in to bat for us. We are so lucky to have them.
This system now means that we are working on Caitin having her own voice and can innitiate conversation for herself rather than only being able to respond to what we ask her. This has to be the highlight of the year for Caitlin so far. It's such a huge thing to think that we might finally be able to really get to know our beautiful, intelligent and funny little girl. She may not feel so isolated now, however, I am a bit scared about what she might tell me in the future when she gets going with it all!!!!!!